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Home
News
Events
Rare Disease Day 2020
Research
Multiomics for rare disease diagnosis
Carers Project Details
Undergraduate research projects
Postgraduate research projects
COVID-19
Charity_Survey
COCOON study: home & community delivered care
COVID-19 clinical impact
Shielding
IMPaCCT_study
REDRESS
People
Past team members
Patient and public partners
Charity partners
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Rare Disease Focus: supporting rare disease throughout all communities
Rare Disease Focus: supporting rare disease throughout all communities
Latest News
Excellent meeting passionate North West group of carers supporting people living with rare diseases
8 March 2024
New survey seeking experiences of research by people living with rare diseases
29 February 2024
All-Ireland Children and Young Adults Research Advisory Group for Rare Diseases (RAIN CRAG) launched
29 February 2024
Dr Claire Hill at FameLab
21 February 2024
SAPROPTERIN ACCESSIBLE TO ALL AGE GROUPS IN NORTHERN IRELAND
17 January 2024
An Award to Celebrate
10 January 2024
View all news
Latest Events
Patient Engagement 101
19/06/2024 @
4:00PM - 6:00PM
Online
International Conference on the Science & Practice of Rare Diseases
28/05/2024 - 29/05/2024 @
9:00AM - 5:00PM
London UK
RAiN Co-Ordination of Care Webinar
23/05/2024 @
10:00AM - 2:00PM
Zoom
Target trial emulation using observational data in maternal and child health research.
23/05/2024 @
4:30PM - 9:00PM
Zoom
Supporting children and families living with rare diseases in NI
15/05/2024 @
9:30AM - 1:30PM
Dunsilly Hotel, 20, Dunsilly Road, BT41 2JH
Overview of biostatistical approaches in clinical research of rare diseases
15/05/2024 @
3:00PM - 4:00PM
Online
View all events
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#RareDiseaseNI
Welcome to our Rare Disease Focus
Raising awareness & supporting rare disease throughout all communities